Prenatal Information
Welcome to the North Carolina Down Syndrome Alliance (NCDSA). If you received prenatal test results that confirm or suggest a diagnosis of Down Syndrome, NCDSA is here to provide the support that would be most helpful to you and your family.
NCDSA services and resources are free and confidential. NCDSA provides accurate, up-to-date, balanced information, and the opportunity to speak with a trained Parent Mentor. Our Parent Mentor Program provides you with an experienced parent of a child with Down syndrome. Parent Mentors answer questions honestly and will do their best to describe the joys and challenges they have experienced in their personal journeys. NCDSA strives to match you with a parent mentor that has similar experiences.
Resources available:
- Prenatal Information Packet
- Parent Mentor Program
- Personal connection to the National Down Syndrome Adoption Network
- “Understanding a Down Syndrome Diagnosis” contains the latest medical and developmental information about people with Down syndrome as well as resources, pregnancy options and helpful visuals and graphics. This booklet has been reviewed by major medical organizations involved in expectant women’s health. A copy of this booklet is included in NCDSA’s Prenatal Information Packet or you may download a digital copy here.
For immediate information and support, contact Betsy John, NCDSA Family Support Specialist at familysupport@ncdsalliance.org or (984) 200-1193. You may also complete the form by clicking the button below.
The North Carolina Down Syndrome Alliance is committed to helping our staff and their families, our community groups, partners, and the Down syndrome community to stay healthy by doing what we can to prevent the spread of the coronavirus, COVID-19. To help mitigate the impact of this evolving public health issue, NCDSA’s physical offices will be closed until further notice. NCDSA staff will be working remotely to serve children and adults with Down syndrome in North Carolina and available 9am-5pm EST by phone, email, and virtual meetings. In the meantime, please be safe and stay healthy! Learn more about Covid-19 and Down syndrome. 













