New & Expectant Parents
If your baby has just received a Down syndrome diagnosis, you are probably experiencing a whirlwind of emotions. The first thing to understand is that you are not alone. The NCDSA represents the interests of all families like yours, providing critical support and programs, up-to-date information, and opportunities to connect with other families.
Parents First Call Program
For new parents of babies with Down syndrome, an opportunity to speak with other parents who have experienced what you are experiencing can be invaluable. The NC Parents First Call Program is a volunteer, state-wide group of trained parent mentors available 24/7 to listen, share, answer questions, and provide valuable information.
New Parent Welcome Package
The NCDSA offers all new parents of children with Down syndrome a welcome baby bag that includes two books, a new parent packet of information, a newborn onesie, a baby blanket, and other goodies!
To request the package, visit and complete the Welcome Baby Bag Form
New Parent Meetings and Socials
NCDSA offers opportunities to connect with other families in many ways. Please see our calendar (insert link) for upcoming events such as Moms’ Night Out, Dads’ Night Out, New Parent Meetings, New Parent Socials, and much more! These programs allow parents of individuals with Down syndrome to come together for informal support, networking and fun. The gatherings are held several times a year in many different locations.
To help with your first steps on your journey, we offer three free, digital e-books and on-line resources that are immediately available to you, including:
National booklet Understanding a Down Syndrome Diagnosis has the latest medical and developmental information about people with Down syndrome as well as local and national resources, pregnancy options and helpful visuals and graphics. A copy of this booklet is included in our Welcome Baby Bag, but you can view a Digital Copy if you prefer.
Visit our national affiliate’s website, the National Down Syndrome Congress (NDSC), for a wealth of information for expectant parents.
The National Down Syndrome Society’s A Promising Future Together guide is written specifically for new and expectant parents.
TDSN New Parent Handbook is a valuable resource for new parents in the Triangle and throughout North Carolina that has been put together by local families within our group. It contains family stories as well as a current medical reference guide.
Other Helpful Links:
Duke Down Syndrome Clinic:
The Department of Health and Human Services manages the delivery of health-and human-related services for all North Carolinians, especially our most vulnerable citizens children, elderly, disabled and low-income families. The Department works closely with health care professionals, community leaders and advocacy groups; local, state and federal entities; and many other stakeholders to make this happen.
Down Syndrome Diagnosis Network supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome.
You are not alone. Join one of our many private rockin’ mom and dad online groups for new and expectant parents.