Advocacy Opportunity: Ask Your NC Senator to Fully Fund Medicaid

What’s going on?

North Carolina lawmakers haven’t passed a new state budget yet, so our Medicaid program is under-funded by hundreds of millions of dollars. As a result, on October 1, the state began reducing what it pays to medical providers for treating patients who have Medicaid. Many families in the Down syndrome community and broader disability community rely on Medicaid-funded services like the Innovations Waiver; 1915(i) services; CAP-C and CAP-DA; Intermediate Care Facilities; Private Duty Nursing; ABA therapy; occupational, physical, and speech therapy; and respite and Community Living Supports. North Carolinians who have disabilities, are caregivers for a loved one with a disability, or who provide services for people with disabilities report that these Medicaid cuts have caused them emotional distress, disrupted services, and reduced wages. You can read more in the North Carolina Council on Developmental Disabilities (NCCDD) survey here and on the NC Department of Health and Human Services website here.

Our Concern

NCDSA is concerned about the impact to our loved ones with Down syndrome if our NC legislators don’t pass a budget and fully fund Medicaid as soon as possible. Medicaid services provide the care and support many individuals with Down syndrome need to be healthy and happy so they can reach their full potential.

Call to action!

Please consider writing or calling your North Carolina state (NOT federal) senator to ask them to pass a budget now to fully fund Medicaid.

Find your state senator using this tool and click on their name to get their contact info and their legislative assistant’s email address.
Write a non-partisan, respectful, and brief request that your NC senator pass a state budget that fully funds Medicaid. Need help? Email christy@ncdsalliance.org
Thank them for their time.
Extra credit: The NCCDD has released another survey to capture the stories of anyone impacted by these cuts to Medicaid in the disability community. If you’ve personally experienced negative effects of the cuts, we invite you to complete this survey. (This is not an NCDSA survey so please send any questions to NCCDD.)

Thank you for advocating!

UNC Down Syndrome Clinic Now Open!

The board of directors and staff of NCDSA attended the ribbon cutting for the much-anticipated UNC Down Syndrome Clinic on March 17, 2025. The clinic offers coordinated care across multiple disciplines including physical therapy, occupational therapy, audiology, speech therapy, nutrition, family medicine, and more. WRAL covered the opening, click here to see the article and video.

NCDSA is proud to support the clinic by funding the Nurse Clinic Coordinator position, which plays a pivotal role in both clinic operations and providing resources, information, and support for families. Thank you to all the generous donors who have made this possible!

Appointments are now available through the clinic’s website at https://www.uncchildrens.org/uncmc/unc-childrens/care-treatment/primary-care/outpatient-pediatrics-section/down-syndrome-program/

Announcing the UNC Down Syndrome Clinic

We are thrilled to announce our latest partnership to meet the needs of families across North Carolina. We know this will leave a lasting positive impact. Join us at the Triangle Buddy Walk on October 20th, 2024 for a ceremonial ribbon cutting! www.trianglebuddywalk.com