Parents & Caregivers of Teens and Adults
Teens and adults with Down syndrome are striving for and reaching their goals and experiencing life similar to that of their peers. Whether graduating from high school, receiving a post-secondary education, working in competitive employment, or living as independently as possible, individuals with Down syndrome are reaching milestones that were previously unimagined.
There is a great deal of planning and available resources to create a future for individuals with Down syndrome.
North Carolina Down Syndrome Alliance partners with national, state, and local agencies to bring valuable information to people with Down syndrome, their families and caregivers, and the community to help navigate life through adulthood.
Transition to adulthood:
- A Guide for Parents of Young Adults with Developmental Disabilities
- Transition to Adulthood
- Rethinking Guardianship
- Guardianship in North Carolina
Resources for teens 1nd adults:
- NC Innovations Waiver provides home and community-based services and covers the lifespan of an individual with Down syndrome
- Supplemental Security Income (SSI) and Medicaid is available for individuals with Don syndrome who qualify when they turn 18 years old
- Vocational Rehabilitation provides services to assist in gaining employment
- Community colleges and universities offer a variety of post-secondary educational opportunities for individuals with disabilities
- ABLE Accounts allow individuals with Down syndrome to save for their future without jeopardizing their means-tested benefits
- Housing options are becoming available for individuals with Down syndrome
The North Carolina Down Syndrome Alliance is committed to helping our staff and their families, our community groups, partners, and the Down syndrome community to stay healthy by doing what we can to prevent the spread of the coronavirus, COVID-19. To help mitigate the impact of this evolving public health issue, NCDSA’s physical offices will be closed until further notice. NCDSA staff will be working remotely to serve children and adults with Down syndrome in North Carolina and available 9am-5pm EST by phone, email, and virtual meetings. In the meantime, please be safe and stay healthy! Learn more about Covid-19 and Down syndrome. 













