Camp SHINE and NCDSA Board of Directors President, Jeff Lineberry, were featured on Spectrum News 1! We encourage you to check out the article and share the video to showcase the impact NCDSA has on your local community! It’s personal stories like this that help the larger community understand just how impactful and critical their support is, especially during Buddy Walk season!
TWENTYONE Blog
UNC Down Syndrome Clinic Now Open!
The board of directors and staff of NCDSA attended the ribbon cutting for the much-anticipated UNC Down Syndrome Clinic on March 17, 2025. The clinic offers coordinated care across multiple disciplines including physical therapy, occupational therapy, audiology, speech therapy, nutrition, family medicine, and more. WRAL covered the opening, click here to see the article and video.
NCDSA is proud to support the clinic by funding the Nurse Clinic Coordinator position, which plays a pivotal role in both clinic operations and providing resources, information, and support for families. Thank you to all the generous donors who have made this possible!
Appointments are now available through the clinic’s website at https://www.uncchildrens.org/uncmc/unc-childrens/care-treatment/primary-care/outpatient-pediatrics-section/down-syndrome-program/
Announcing the UNC Down Syndrome Clinic
We are thrilled to announce our latest partnership to meet the needs of families across North Carolina. We know this will leave a lasting positive impact. Join us at the Triangle Buddy Walk on October 20th, 2024 for a ceremonial ribbon cutting! www.trianglebuddywalk.com
Urgent Advocacy Action Alert
End Discrimination Against Individuals with Down Syndrome Today!
We need you to tell your Members of Congress that individuals with Down syndrome deserve to be able to work, save, and earn their way to independence!
Did you know that adults with Down syndrome are told they cannot save their money? In fact, they will be penalized if they ever have assets of more than $2,000!
Just last week NCDSA received yet another phone call from a sister of a 30-year-old man with Down syndrome who she is caring for after their parents’ death. She was asking for help on figuring out his money. He has so many needs, she has her own children to care for, and yet, they are not allowed to “save” his money to buy him a new communication device.
Meet the New Executive Director
NC Down Syndrome Alliance to Hold 2022 Buddy Walk Oct. 16th in Holly Springs
NC Down Syndrome Training Center Ribbon Cutting Ceremony
NC Down Syndrome Alliance to Hold 2021 Buddy Walk October 24th in Cary
The 23rd Annual Buddy Walk raises funds to provide resources to North Carolina individuals with Down syndrome and their families.
Raleigh, NC —The North Carolina Down Syndrome Alliance is hosting the 23rd annual Buddy Walk to raise funds to provide programming and resources to individuals with Down syndrome throughout North Carolina This year, the walk will be held on October 24th at Panther Creek Highschool in Cary, NC 1:00 to 5:00pm.
Continue reading “NC Down Syndrome Alliance to Hold 2021 Buddy Walk October 24th in Cary”
Lawmakers Introduce Legislation to Prevent Organ Transplant Discrimination
NCDSA’s Response to HB 453 – April 2nd
North Carolina Down Syndrome Alliance (NCDSA) is an effective, compassionate, and comprehensive resource on Down syndrome throughout North Carolina. NCDSA envisions a culture in which all people with Down syndrome are empowered to achieve their full potential and live healthy, productive lives as valued citizens within the fabric of society. NCDSA has a robust New and Expectant Parent Program and Medical Outreach Program as part of the North Carolina First Call Program, a program free of charge. NCDSA provides accurate, up-to-date, unbiased information about the realities of raising a child with Down syndrome in the 21st century. NCDSA works diligently to dispel the antiquated myths associated with Down syndrome. NCDSA arms health care providers who deliver a prenatal or postnatal diagnosis of Down syndrome to a family with information that paints a truer picture about their family’s future. NCDSA provides new parents with crucial information as well as pairs them with trained parent mentors who walk beside them on their new path in life.
NCDSA believes children with Down syndrome living in North Carolina benefit from Early Intervention Services that provide supports during critical developmental years. Early Intervention Services lay the foundation for building a solid beginning to a child’s education. An education that includes learning beside their peers without disabilities and prepares them for life after high school. NCDSA works to advance the interests of adults with Down syndrome to live and work in the community, often with supports provided by state funded services. When supports and services benefiting people with Down syndrome are fully funded and made available to families, quality of life and healthcare outcomes improve for people with Down syndrome.
To that end, NCDSA believes by providing accurate, up-to-date information about Down syndrome and funding supports and services to benefit people with Down syndrome across their lifespan, people with Down syndrome can achieve a full and productive life. North Carolina House Bill 453 titled Human Life Non-Discrimination Act/No Eugenics was crafted without consultation of NCDSA. The Staff and Board of Directors of NCDSA is committed to the Down syndrome community and is encouraged by other initiatives that work to directly impact the lives of people with Down syndrome in North Carolina. Subsequently, NCDSA encourages its supporters and allies to work to strengthen the programs designed to provide a dignified and substantial future for people with Down syndrome living in North Carolina.
