The NCDA offers information and resources to help you provide the best care possible for your patients with Down syndrome or for your new or expectant families.
If you are preparing to deliver a prenatal or postnatal diagnosis of Down syndrome, we recommend Delivering a Prenatal or Postnatal Diagnosis.
The NCDSA NC Parent’s First Call Program offers your new and expectant families accurate, up-to-date information and an opportunity to speak with a trained parent mentor. We encourage you to refer new and expectant families to this program.
If you are caring for an individual with Down syndrome, the American Academy of Pediatrics recently published updated healthcare guidelines. The guidelines provide information about health concerns for individuals with Down syndrome from birth through adulthood. It is also helpful to refer patients to a local Down Syndrome Clinic for specialized care.
As a healthcare professional, if you are interested in additional information about Down syndrome and related topics, you may request a Grand Rounds medical training at your hospital.
Thank you for taking time to research options that will help you provide individuals with Down syndrome and their families with the information, resources and support that they need.
For more information or to make a referral to the NC First Call program, please contact Mahala Turner, Family Support Specialist, at mahala@NCDSAlliance.org or by calling 984-200-1193.
“Health Care Information for Families of Children with Down Syndrome” was created in July 2013 by the American Academy of Pediatrics (AAP) and is based on the guidelines. It is a great resource to give parents and families about the special health care needs for children with Down syndrome. You may also be interested in learning about aging and Down syndrome.
It is also helpful to refer patients to a local Down Syndrome Clinic for specialized care. There are currently two Down syndrome medical care centers in North Carolina:
Thank you for caring for people with Down syndrome and their families. Please support you families by connecting them with the North Carolina Down Syndrome Alliance and reach out to us if we can be helpful.